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On a sunny July
afternoon, most three year olds spend the
day playing outside. Young children enjoy
warm summer days because they ca explore
their surroundings, play with friends ad
discover new experiences. One little girl
I know, however, spends several afternoons
a week in the stuffy playroom of a Pediatric
Oncologists office. Still unsure of what
it means to be diagnosed with leukemia,
she spends long hours waiting for the results
of her platelet counts. These test results
determine whether she will spend the night
at home or in the hospital. The children
at the clinic are forced to deal with Leukemia
everyday; each aspect of their lives is
affected by their sickness. Because they
have been diagnosed with cancer, the children
are forced to surrender their childhoods
and must learn to deal with the uncertainty
of a life threatening illness. Volunteering
weekly at Dr McNamara's office for Circle
of Care has changed my perception about
what it is like to experience childhood
with leukemia.
As I enter the Doctor's office, I
observe the usual crowd of overtired parents
sipping their coffee anxiously while their
children play games with one another. I
briefly glance into these parents'
eyes and see their hardened faces. Some
have been forced to quit their jobs, postpone
family vacations or set aside their plans
for the future. The parents feel guilty
because they are incapable of protecting
their children from harm and sickness. They
live with the shame of not being able to
provide their other children with adequate
attention because they are busy taking care
of their sick children. The parents must
come to the terrifying realization that
they might outlive their one of their children.
The playroom at Dr. McNamara's office
is the most welcoming room in the building.
The variety of activities in the playroom
provides the children with distraction from
their treatments. Looking around the room,
I see a train set, two televisions with
DVD players, a play station and shelves
stocked with games, toys, videos, puzzles
and books. Cabinets in one corner of the
room are filled with snack foods, and the
freezer has a constant supply of ice cream.
Poster size pictures of Dr. McNamara with
his arms embracing former patients decorate
the walls. Although the office's primary
obligation is to care for sick children,
the doctors are ale to fulfill this duty
while establishing a friendly atmosphere.
As I begin to set up the arts and crafts
table, one child's mother approaches
me. "My daughter has been asking about
you all week, she thinks that you're
her best friend." I reply with a smile
and join her at a table where she is working
on a dinosaur-coloring book. When she notices
me sitting next to her, she immediately
lights up and we begin to have a conversation
about "Spinosaureses," her new
favorite kind of dinosaur.
When it is her turn to see the doctor, I
approach her; she has her face pressed against
the fish tank, intently gazing into the
water. As we stare into the tank, she comments
about fish, "Look at that blue fish!
He's beautiful! Look, there, at that
one! What a lovely clownfish!" Even
at age five, her distinct British accent
gives her voice an eloquent, mature quality.
Each word she speaks has a powerful effect;
each new discovery she makes the enthusiasm
she has for pointing out the beauty in the
world. Her attitude towards life motivates
me to appreciate simple pleasures.
Once she becomes tired of watching the fish.
I join two boys who are playing Candyland
in the corner of the playroom. Although
they are both sixteen and their maturity
clearly surpasses the childish board game,
they continue to humor one another with
their intensely competitive attitudes. Throughout
the game, the boys playfully tease one another
while reciting quotes verbatim from a popular
movie, Anchorman. As the game progresses,
I continually find myself stuck in the "Chocolate
Swamp" and it becomes evident that
Kevin is going to be the winner. "Wow
you're really lucky!" I exclaim.
"The only lucky person in the room
is you, Molly. The rest of us have cancer."
He replies with a silly grin. Even though
I know Kevin made the smart remark in an
attempt to be funny, it suddenly occurs
to me he is right. These boys are my peers
and I can easily picture them as my friends
and classmates. They deserve to have the
same experiences and opportunities that
I will be given, but Leukemia has prevented
that.
Volunteering at Dr McNamara's office has
given me much more that I had anticipated.
Before I began visiting the children, I
was clueless to what it would be like to
grow up with cancer and it's devastating
effects. Not only has the Circle of Care
Program educated me about what it is like
to have to grow up with illness, but also
it provides me with the strength to face
my own problems. As I leave the office every
Monday, I am filled with satisfaction. Volunteering
to play with children once a week appears
to be insignificant, but I know I have made
a difference in the lives of those I help.
Although my trips to the office only take
a few hours out of my day, for many patients
and parents who crowd the playroom, it is
the center of their lives.
— Molly,
Age 16
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